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Barb 
Silver Level
Joined: 12 Sep 2009
Location: Turner, Oregon
Points: 125
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 Topic: Just checking in with another update...
Posted: 08 Dec 2009 at 1:10pm |
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No-one ever did say that the adventure would be a bed of roses all the time!!!
On the 11th of November my white cell count was over 600,000 (a normal persons white cell count would be in a range of, low..4,000 to top..11,000) so mine at (600,000) was just about topped out. Went to the Dr. and told him I was in trouble...Tony & I went in his office and he closed the door and gave me the "talk" (advised to DNR) which scared us both very much!! And then checked me into the hospital for 7 days of treatment...but this time the treatment seems to be working...I went home for 2 weeks (when we had our mini vacation...that vacation was just as much for Tony as for me!! It can be just as hard (or harder) on the caregiver as the person who is ill!!) This time my white cell count was dropping without me being hooked to a chemo bag or getting an injection....Tony & I were both numb because that hadn`t happened before and was to us a very good sign. Went again to the hospital on Dec 2nd and got to come home on Sunday the 6th. THIS time the white cell count has gone below the "normal" so I finally have some breathing room... Sitting in a hospital bed gives a person lots of time to reflect and focus on what is most important in life....when this started in early August...I was being a smart A%% and said that I was waiting for the time when I WANTED to have a big juicy hamburger and a beer at our favorite spot. That doesn`t even come into the picture anymore...my priorities have turned around about 360 degrees. While in the hospital I had a visit from Pastor Paul from St Marks Lutheran.. he gave me communion...which was very important to me (Tony is Catholic and me being Lutheran I wasn`t able to have communion since I wasn`t Catholic and hadn`t done confession) I told Pastor Paul the other day that one of my main goals is to be well enough (I have absolutely no immunity right now and so catching a cold or flu or anything would not be good!!) to be able to attend St. Marks and have communion with the congregation. That and to survive this cancer to tip the scales to 49-51 (instead of 50-50) AND...to be here for another 2, 5, 10, 20 years (Tony needs me as much as I need him!!)
Lastly...my cousin came out Thanksgiving morning to give me a "short" haircut...which was something I wanted and needed...the following Sunday my hair started falling out by the handfulls!! BUT...I have lots of hats!!
Sorry this is soooo long...but it just about covers everything!!
Hope everyone has a Very Merry Christmas...and please remember the reason we celebrate!!
Barb
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omahagreg
Orange Level Access
Joined: 11 Sep 2009
Location: Omaha, Nebraska
Points: 2805
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Posted: 08 Dec 2009 at 1:44pm |
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Sorry for your troubles. Thanx for the update!
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Greg Kroeker
1950 WD with wide front and Freeman trip loader
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StanInLowerAL
Orange Level
Joined: 13 Sep 2009
Location: South Alabama
Points: 222
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Posted: 08 Dec 2009 at 2:04pm |
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Wil M (NEIA)
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Joined: 11 Sep 2009
Location: NEIA
Points: 478
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Posted: 08 Dec 2009 at 2:09pm |
Barb
Stay in good spirits. Will keep you in my prayers.
Wil
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"Yet there are soulless men whose hand and brain tear down what time will never give again." Anderson M Scruggs
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Leonard
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Joined: 06 Nov 2009
Location: Deer Park, WA
Points: 558
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Posted: 08 Dec 2009 at 2:11pm |
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JimD
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Joined: 11 Sep 2009
Location: Mounds, OK
Points: 2112
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Posted: 08 Dec 2009 at 2:21pm |
Barb, truly wish I had some profound words to help. I was afraid the mini vacation was not optional, and honestly worried. It's good to evaluate life goals. Sounds like you have adjusted them and I expect you will meet them with tenacity.
JimD
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Owner of OKtractor.com PM for an instant response on parts. Open M-F 9-6 Central. We have new and used parts. 877-378-6543
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GregLawlerMinn
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Joined: 11 Sep 2009
Location: Lawler, Mn
Points: 1226
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Posted: 08 Dec 2009 at 2:35pm |
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Merry Christmas Barb. Pray that the Lord will provide considerably better health and longevity than what you are asking for.
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Dave H
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Joined: 11 Sep 2009
Location: Central IL
Points: 3507
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Posted: 08 Dec 2009 at 3:07pm |
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Greg (Hillsboro, OH)
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Joined: 11 Sep 2009
Location: Hillsboro, OH
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Posted: 08 Dec 2009 at 3:29pm |
Barb,
So glad to hear the good news. Keep up the good work and the faith. Your priorities are in the right place, with your God, Tony, and family (we're family here for you too). You've got a LOT of people praying and pulling for you. We expect to see you around here for a long time. Stay positive and keep us updated. We all love and miss you on this family forum.
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skipwelte
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Joined: 29 Oct 2009
Location: Anthon, Iowa
Points: 723
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Posted: 08 Dec 2009 at 4:13pm |
Hang in there Barb and Tony!!!! Ya never know what kinda cards yer gonna get, but ya gotta play em the best ya can, sounds like your doin that!!!! Merry Christmas and a Happy New Year!!!!!!!!!!!!
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LouSWPA
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Joined: 11 Sep 2009
Location: Clinton, Pa
Points: 24345
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Posted: 08 Dec 2009 at 4:29pm |
Barb,
Deb and I continue to think of you and pray for you. I, like JimD was concerned about the "vacation".
I pray that you continue to progress and you and Tony have many more years together.
God Bless
Lou
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Tracy Martin TN
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Joined: 11 Sep 2009
Location: Gallatin,TN
Points: 10651
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Posted: 08 Dec 2009 at 4:33pm |
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Barb, Keep up your spirit. God Bless you both. Tracy Martin
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DreaminGA
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Joined: 20 Oct 2009
Location: Elberton, GA
Points: 84
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Posted: 08 Dec 2009 at 4:45pm |
Barb, great to hear you're doing well with this. I have a SIL that was diagnosed 6 years ago with the same thing you have(CML?). She has good days and bad, but hopes that she will be able to see her 13 year old graduate. It seems that this is like a lot of things. The earlier they find it, the better your chances. My brother was only 32 when they diagnosed him. His count was over 500,000 and spleen had swelled over 4 times normal size. Apparently, he had had this for some time, but it was never detected. Sadly, he is no longer with us. He only lasted 3 days after diagnosis. Hope this does'nt discourage you, as you seem to be doing quite well. You have been in my prayers since I found out about what you had going on. Stay strong and keep in touch with the man upstairs. He can work miracles, you just have to keep faith and keep fighting.
PS, my SIL is taking Gleevik, which seems to be what has kept her here this long. Do you know anything about this drug? She says the side-effects are pretty bad, but it's better than the alternative. Keep us posted. Merry Christmas and God bless. Dream.
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It wasn't me! It was a short, fat, tall, skinny guy that looked like me!
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Francis/Northern MN
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Joined: 20 Sep 2009
Points: 131
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Posted: 08 Dec 2009 at 4:52pm |
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Gary in da UP
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Joined: 13 Sep 2009
Location: EUP of Mi.
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Posted: 08 Dec 2009 at 5:30pm |
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Keep up the fight!, Keep up the ice cream therapy and do the cheeseburger and beer thing ,too. Gary. PS thank you both for the prompt and personal service , The relationship you have with your customers is something many other business's can only wish for. Thinking of you, both, Gary
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I started out years ago with nothing.... after this divorce , I'll be getting most of it back.........
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Bob D. (La)
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Joined: 12 Sep 2009
Location: Louisiana
Points: 25529
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Posted: 08 Dec 2009 at 5:47pm |
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Glad to hear things are improving. Also glad you want to be around to help Tony. Just remember, don't pester us too much.LOL Will keep you on my prayer list.God can and does work miracles.Sometimes we don't see them, and at other times ignore them. That beingsaid, may He continue Blessing you and provide all the healing necessary to keep you strong and going for many years to come. God Bless.
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When you find yourself in a hole,PUT DOWN THE SHOVEL!!!
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ac crazy
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Joined: 19 Oct 2009
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Posted: 08 Dec 2009 at 6:02pm |
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i am sorry to here of this in your life, but keep positive it really helps a persons immunity when in a situation like this we are all praying for a speedy recovery.... you can win this battle... we have two of our family thats been through this in the past. you are some of the nicest people i have met on here. my heart goes out to you. keep your chin up...and thanks for the update..
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Jack(Ky)
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Joined: 12 Sep 2009
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Posted: 08 Dec 2009 at 6:18pm |
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Good to here from you Barb. Keep up the fight.JP
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norm [ind]
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Joined: 16 Sep 2009
Location: BOURBON,IN.
Points: 667
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Posted: 08 Dec 2009 at 6:29pm |
thanks for the update our prayers are with you too
norm&barb
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Ron(WA)
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Location: Bellevue, WA
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Posted: 08 Dec 2009 at 6:49pm |
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Great to hear you are making headway. Keep it up. My thoughts are with you. Thanks for the update.
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NickT(Ky)
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Joined: 13 Sep 2009
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Posted: 08 Dec 2009 at 6:57pm |
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TerrySWIA
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Joined: 11 Sep 2009
Location: Iowa
Points: 153
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Posted: 08 Dec 2009 at 7:24pm |
Barb, Keep the faith. You and Tony are in our prayers.
Terry and Kim
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Brian Ahart
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Location: Missouri
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Posted: 08 Dec 2009 at 7:26pm |
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Hang in there Barb. Our thoughts and prayers are with you. Merry Christmas to you and your family as well.
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Bob-Maine
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Joined: 11 Sep 2009
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Posted: 08 Dec 2009 at 7:41pm |
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Barb, Don't ever apologize for a long post. Sometimes sharing your problems and thoughts with others is good for you. We will be praying for you and thinkng of you. Bob@allisdowneast
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Kenny(AR)
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Joined: 11 Sep 2009
Location: Arkansas
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Posted: 08 Dec 2009 at 7:56pm |
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Thanks for the update, I will add you in my prayers, Barb. Keep us posted when you feel up to it.
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Jacob (WI,ND)
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Joined: 11 Sep 2009
Location: Kenmare, ND
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Posted: 08 Dec 2009 at 7:59pm |
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Times like these I never know what to say.... I'm glad to hear things are looking good! Keep fighting, and stay positive! We're here for you!
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Jacob Swanson
1920 6-12; 1925,1926 20-35 longfenders; 1925,1926 15-25's; 1927,1929 20-35 shortfenders; C; B's; IB; WC's; WD; WD45
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Morris Hill NC
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Joined: 16 Sep 2009
Location: Youngsville NC
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Posted: 08 Dec 2009 at 8:03pm |
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Barb
Keep up the postive thinking and prayers and believe and you could
live to be 100. I had a neighbor to take all of the chemo and radiation
at the National Cancer institute in Zion Il. ,they sent him home with
60 - 90 days to live and he made it 6 more YEARS. Will say a prayer
for you and Tony. You sound like you are living for the Lord and if that
is the case you can't go wrong.
Morris
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Dave(inMA)
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Joined: 12 Sep 2009
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Posted: 08 Dec 2009 at 10:20pm |
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Great to hear from you, Barb. I was talking with Tony the other day and heard about your latest chapter in the adventure. Know that your many, many friends out here are praying for you - you're on "the list" at our church - and are always interested in how you are doing. We'll keep praying for more progress and a happy end to the adventure. BTW, I doubt God would be offended if you munched down a cheeseburger! He might even consider it an appropriate celebration of your progress, both against the illness and in your faith journey. God bless. Dave
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WC, CA, D14, WD45
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EricPA
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Joined: 13 Sep 2009
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Posted: 08 Dec 2009 at 10:30pm |
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SHAMELESS
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Joined: 13 Sep 2009
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Posted: 08 Dec 2009 at 11:41pm |
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barb
i think about you and tony alot, tho we have never met. both of you have been a great inspiration to all of us on this site. our family will continue to pray for the both of you and someday maybe we can meet you and tony. keep being strong, if you show god that you won't give up, he will help you more! you know....he's "THE MAN"!!! and he just might need some repaires for his ac's up there soon!! where else would he go to get them!!!
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