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Home care for our elders

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Coke-in-MN View Drop Down
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Joined: 12 Sep 2009
Location: Afton MN
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Coke-in-MN Quote  Post ReplyReply Direct Link To This Post Posted: 06 Oct 2022 at 10:16am
One od sons friends was taking care of his dad who had dementia , he ended up getting a full time job taking care of him and paid for by insurance . When his father passed his mother also started havig problems and he became paid healthcare individual . Now he has his mother in law also staying there and is reimbursed for her care . 
  only thing he had to do was turn his lower level walkout into 2 appartments - their own living area as sort of rental units . 
 So between being a care giver he doesn't work but that is his full time job now . His wife is a school teacher so her family insurance covers him and their kids so his expenses there are covered by her . 
  Now when grand parents in WI were having problems - social services said they would help them through the winter by moving them into a facilities for a short time . both were in late 80's , the place had them both in same room so was more like their normal living conditions in being together . After winter they both stayed there until grandmother passed about 5 years later . As there were on welfare County attached the home they had in Ellsworth and rented it out to cover recovery for their care . 
 Granddad lived there until he passed at 96 . 
Talking to staff one day they said grand dat had one problem - rather than eat lunch there he would walk to town about 1/2 mile from place to have a brandy and cigar at local watering hole - do it about 3 or 4 times a week . 
  Redeeming factor was one of my cousins worked there as a LPN so spent some time seeing them both during the week - 
Life lesson: If you’re being chased by a lion, you’re on a horse, to the left of you is a giraffe and on the right is a unicorn, what do you do? You stop drinking and get off the carousel.
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BroseVino View Drop Down
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Joined: 24 Jul 2023
Location: USA
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BroseVino Quote  Post ReplyReply Direct Link To This Post Posted: 03 Nov 2025 at 9:36am
I went through something similar with my dad and found that little things made a big difference, like keeping a whiteboard with key info by his chair. Also, if you're in the UK, getting a carers card uk helped me prove I was acting on his behalf for appointments and emergencies. Some places even gave small discounts or priority queuing, which was useful during busy hours.

Edited by BroseVino - Yesterday at 7:31am
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DMiller View Drop Down
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Joined: 14 Sep 2009
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Post Options Post Options   Thanks (0) Thanks(0)   Quote DMiller Quote  Post ReplyReply Direct Link To This Post Posted: 03 Nov 2025 at 11:06am
Now over a decade and half, Wife took a Leave of Absence from work to attend her Dad dying of COPD Complications, was explained by SEVERAL Health Care Workers that SHE and the family did not want nor had to do that as Gus had purchased Care Insurance from the carpenters hall that Covered ALL Hospice Care expenses.  Wife and Sis In law would NOT Listen.

Gus needed pain meds, REFUSED them and the girls would NOT force use, then he would scream at them could not breath, Open Windows, No Air, even in December with snow flying, and windows already open.

Wife was daily in tears, did not know what to do, and I stayed QUIET as their decision was made and to that end they would have to live with it as Hospice would no longer take him.  He died shortly thereafter, a Visible Death of Pain and Anger she has yet to today come to grips with, buried it and states to any that ask, he died peaceful, that major lie.  Two years later her Mother was having return of heart damage issues, ended up in hospital almost monthly for fluids retention even as on water pills.  Wife and Sis in Law AGAIN, pushing her to Sit, Watch TV, Put legs UP and all would be good.  NOT Doctors orders As I ran across them, was to be WALKING at least three to four NON Strenuous MILES per day to keep leg blood flow stripping off excess fluids, the Next Lie.

Jess ended up in E-Room, chest pains, struggling to breath, attending doc stated she would have to undergo more surgeries and much work to get fluids reduced as she was drowning without swimming.  Jess said NO, she was allowed to fall asleep and died in but a few hours the Girls by her side.  Girls buried that too, BOTH are depressed and will not open up admit were wrong, played Teen Princess Nurses in their fifties and basically sugar coated everything to make their choices the correct ones when weren't.

I will not speak of any of this to them, they set their own living hells afire, they have to open up to get that relieved.  BOTH are seeing Psychiatrists, those people bilk as these to gain financially, have no way to fix what they will not present.

I have a DNR should I get to that point, keep it updated.  I also have instruction should I become unable to fend for self that I be institutionalized, NOT Playing Games.  Already have Hospice LTC policy.
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Sugarmaker View Drop Down
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Joined: 12 Jul 2013
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sugarmaker Quote  Post ReplyReply Direct Link To This Post Posted: 1 hour 35 minutes ago at 9:29am
Someone brought this to the top.
Lots of us are aged or aging parents not well or gone. Like a lot of us we have seen loved ones in poor health and maybe in poor mental health. Where is the place where we tell our stories? Yes each one is different. Mom, Dad Grandparents!
 What is care giving? Are we doing the right things? Are we doing what the cared for would want? Not easy questions and the answers will be all over the map. Time will tell and yes we will have to live with the decisions that we or others make for the care of family members or us at some point. No easy road here. Some good days mixed in with the not so good. Most family members care. But the real caring is some of the actual things that those being cared for need the most. compassion respect, love, touching, hugging, talking, reassurance, food, cleaning, visiting, listening.......
I for sure am not a great care giver to my wife. I have a short fuse and get upset a lot. Dementia is not a pleasant life for your spouse. Many other diseases and conditions can be far worse. I am bless to have my wife with me every day as we trudge through our new life together. She hates it too, even though she has never admitted it. 
We remain in our home. But there may be a time where I cannot do all the things she needs, then another big decision point in our life together.  
The things I miss that Cheryl did for me our kids, grand kids and great grand kids. One of the kids summarized it well. It just isn't fair! So true. But life and the impending death are not all fun and games for sure. 
Thanks for allowing me to write a little here. The screen seems a little blurry, must be some dust in my eyes. I am so blessed!
Regards,
 Chris and Cheryl


Edited by Sugarmaker - 1 hour 33 minutes ago at 9:31am
D17 1958 (NFE), WD45 1954 (NFE), WD 1952 (NFE), WD 1950 (WFE), Allis F-40 forklift, Allis CA, Allis D14, Ford Jubilee, Many IH Cub Cadets, 32 Ford Dump, 65 Comet.
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